Tuesday, June 15, 2010

A very quick update....more to come later today

Hey everyone,

Let me start out by saying thank you so much for your prayers. To say the least this has been a crazy couple of weeks. Patrick is doing much MUCH better, and if things go as planned (knock on wood), we will get discharged tomorrow. It looks like his leak was repaired by the lumbar drain alone. Patrick has really been through it. One of his many doctors came in this morning during rounds, and she cut up with us for a while. After cracking a few jokes, she said with all seriousness "You are one lucky man. We almost lost you Tuesday night." One of his doctors in the critical care unit said that he had never seen anybody so close to death turn around so quickly. There is still some debate on the spinal fluid leak, but most of the doctors think that Patrick's meningitis was so bad and his brain swelling was so much that it tore a hole in the dura (the exterior lining of the brain) allowing the fluid to leak out. All the doctors agree that he was so lucky that he went to the ER when he did and that he was in here. I know without a doubt that if he had been in Columbia, Patrick would have died. Because of all of his treatment (three surgeries, radiation, and chemo), he is a very unique case. They have countless pages of medical records here, and were right on top of it. As soon as we get our walking papers, I'll be online getting a plane ticket. Our 6 year wedding anniversary is this Saturday, and I told Patrick the perfect gift will be him better and us on a plane home! This time 6 years ago I was picking out flowers and making final adjustments to my wedding gown. Who would have ever thought that just a few years later this is where our path would lead. It really makes you appreciate the big and the little things.

Again thank you all for your thoughts and prayers. It has helped us make it through. We look forward to being back.

Erin Stone


  1. All I can say is Praise God, Happy Anniversary and have a safe trip home!!

  2. So glad to hear it! Have a safe and lovely trip home!

  3. You don't know me, but I have followed your blog for a while now. I guess that is the beauty of the internet, you can become invested in caring about someone you don't even know. I found your blog because a friend of mine created a blog and she started following you and led me to you. I just wanted you to know that I have checked to see how you and Patrick are doing and hoped that life was settling down for you. I have hoped that he is recouping from this last set back. I hope you don't mind a comment from a complete stranger, but please know that somewhere out there, there is another positive thought going out into the universe hoping that you and your family are doing well. Take care, Karen

  4. I found your blog through a facebook post by MD Anderson. I read the first post and got hooked so I felt I had to leave a comment. One of the reasons I got hooked is because our situations are very similar. My husband was diagnosed with Leukemia in February. I was 9 months pregnant at the time and my daughter was 2. Although it seemed like my world was crumbling around me at the time the outlook today is looking really good, my husband is in remission and although we have our occasional trips to the ER he is doing great, thanks to God!!
    We live in Houston, I can't imagine how much more difficult things would be having to travel back and forth. If you need anything at all while you guys are in Houston for treatment please let me know. Whether it's needing a place to stay, to a getting a car ride to needing someone for your daughter to play with if she's here (my daughter is 3 now), please know that we'd love to help you guys out in any way possible. I've been trying to find a good support group to meet other people going through the same situation with no luck. Reading your blog was a little therapeutic in that way, to know there is someone else out there going through a similar situation and getting through it remarkably well. I will keep you, your husband and your daughter in my prayers. Things are in God's hands and He will take care of you guys!